She is a teeny-tiny miracle, a wingless angel fluttering on earth and above,
She capers around in her frilly tutu and butterfly barrettes, searching for love.
Like an untainted dew on an opulent David Austin
rose of an autumn morning,
She is fascinated with life, and her smile an
infectiously luminous thing.
She can not make sense of the impairments that fate
lobs at her,
Those tiny veins perforated, soon her vision begins to
blur.
Her twinkling
eyes, terrified of the vastness of the sky,
Her pallor and elfin limbs, often brings her down to
ashes from the high.
She hums the most mellifluous carol, and celebrates
every season,
Momy says hope is on its way, then why is she distraught
over some silly reason?
It rains and Audrey dances like a daisy, jaunty and
ceaseless,
Sometimes like a piece of sun, she burns up, feeble
and hapless.
Bo the Teddy Bear is in low spirits and looks
through the window,
Audrey's Zumba this Sunday, hasn't reached its
crescendo!
Once she bounces back, and hears her heart pounding
no more,
Leaning on the balcony railing, she will hitch her
wagon to a starlit shore.
I wish to see her standing there, remembering Alex,
and feeling like the moon,
With a magical potion of her exquisite dimple, our princess shall conquer the world
soon.
Audrey, you are a special child with gifted talents
and a soul so pure,
The entire universe in its uttermost sanctity shall
pray for your cure.
My ode to all those little hearts like Alex who has recently
lost his battle with Diamond Blackfan Anemia and also dedicated to my
favorite - the irresistibly pretty, exuberant and incredibly brave fighter - Audrey.
DBA is a rare blood disorder that causes low Erythrocyte (Red Blood Cell)
without fundamentally affecting other blood components like the platelets and
the Leukocyte or White Blood Cells. It may also be associated with birth
defects or abnormal features. Usually during infancy; 90% have severe anemia for
the first year of life. A significant number of cases go into instant remission
and survival up till adulthood can be expected in a lot of cases. Although with
proper care and treatment, people with DBA can live healthy lives and enjoy
most of the normal day-to-day activities, if all medication fails, blood transfusion is the only option.
Regular blood transfusions mostly lead to problems of iron overload. Bone
marrow transplantation is the only definitive treatment but it is not always
successful. Complications of treatment and incidence of Cancer may also reduce
one's life expectancy. DBA education is the need of the hour as well as a
handful of kindness that might help us spread its awareness, thus save another
life, another bundle of joy.
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